TO all:
Vava received so many balloons in the past few days, so enough already on those for awhile.
We are just sittin' here waiting....hope to know today.
Thank you all so much.
Vava was very happy yesterday: no procedures.
Just a heads up: if you are sick, and feel that you should wear a mask to protect Vava when visitng, you should NOT visit. The minute anyone comes in here wearing a mask, the hospital puts us on 5 FIVE days of isolation. We can't go out of the room, be in the halls, etc. This is because so many kids here just had transplants, are very delicate, etc....
It's very touchy here. We are dying to see everyone, and Vava really wants to see her school pals. Yesterday we put her in a chair and hauled her and equipment out into the air. Her friends Ani and Jessica came, and there was bliss for 1/2 an hour.
Vava is eating very little. 1/4 of a bagel or a few sips of smoothie. The only things she ate with gusto were Gwen's crab salad, Jackie's meatballs and angelhair, and Ezells chicken.
We have an area with a refrig, microwave, paper plates etc.....
Ok. Back to waiting.
Love,
ki
Vava received so many balloons in the past few days, so enough already on those for awhile.
We are just sittin' here waiting....hope to know today.
Thank you all so much.
Vava was very happy yesterday: no procedures.
Just a heads up: if you are sick, and feel that you should wear a mask to protect Vava when visitng, you should NOT visit. The minute anyone comes in here wearing a mask, the hospital puts us on 5 FIVE days of isolation. We can't go out of the room, be in the halls, etc. This is because so many kids here just had transplants, are very delicate, etc....
It's very touchy here. We are dying to see everyone, and Vava really wants to see her school pals. Yesterday we put her in a chair and hauled her and equipment out into the air. Her friends Ani and Jessica came, and there was bliss for 1/2 an hour.
Vava is eating very little. 1/4 of a bagel or a few sips of smoothie. The only things she ate with gusto were Gwen's crab salad, Jackie's meatballs and angelhair, and Ezells chicken.
We have an area with a refrig, microwave, paper plates etc.....
Ok. Back to waiting.
Love,
ki
1 comment:
Auntie El and Auntie Gwen got a Va sighting tonight, along with Unca Michael, Uncle Scottie, and cousin Chloe. This was cool, especially because Vava was looking pretty good. Really good, actually - color in her cheeks, a twinkle in her eye - espcially when she saw the gi-huge-ic teddy bear we brought her. As big as she is, only shorter legs.
So I'll let Marty or Ki give the update on diagnosis and treatment plan. Lots to think about in the weeks to come, how to make it tolerable for these guys. It takes a village...
Auntie El
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