This blog is dedicated to Vava: a smart, beautiful, strong-willed, sparky, hilarious, genuine, and loving girl who needs our care and support as she faces the challenge of a serious illness. Her parents, Marty and Ki, also need the support of their family and caring community of friends. The goal of this blog and the calendar at left is to keep people informed without the need to send out or track group e-mails, and to organize support for them using the shared calendar function. I'm Joanie, Marty's sister, Ki's sister-in-law, and Vava's aunt. I'm not an experienced blogger but this looks pretty straightforward. The responsibility will be on all of us to check the blog for updates on Vava's diagnosis, treatment progress, and family support needs, and to post our own support tasks on the calendar according to family requests
E.g., a family post might tell us they would like to have dinners brought to the hospital while Vava is in-patient. Ellen signs up to bring dinner for 3 Mondays in a row. Everyone can see this so Rose signs up for 3 Wednesdays during those same weeks. Also posted is a request to bring Vava's schoolwork (gosh, Vava would just love this). Ani signs up to do this every Thursday. Another friend signs up for Mondays.
If you want me to add something to the blog functionality (maybe you think there are other area merchants I should add to the "gift card ideas" list on the left), just send me an e-mail at jduffell@cfchildren.org
I am not going to explain the facts of Vava's illness in this post; I'll leave that to Marty and Ki who are in daily and direct contact with Vava's medical team.
Because this blog is semi-public, I'd like to keep last names off for the sake of privacy and security.
That's it for now. Let's see how this system works, and when all else fails, let's just hold hands and remember how much we love each other.
E.g., a family post might tell us they would like to have dinners brought to the hospital while Vava is in-patient. Ellen signs up to bring dinner for 3 Mondays in a row. Everyone can see this so Rose signs up for 3 Wednesdays during those same weeks. Also posted is a request to bring Vava's schoolwork (gosh, Vava would just love this). Ani signs up to do this every Thursday. Another friend signs up for Mondays.
If you want me to add something to the blog functionality (maybe you think there are other area merchants I should add to the "gift card ideas" list on the left), just send me an e-mail at jduffell@cfchildren.org
I am not going to explain the facts of Vava's illness in this post; I'll leave that to Marty and Ki who are in daily and direct contact with Vava's medical team.
Because this blog is semi-public, I'd like to keep last names off for the sake of privacy and security.
That's it for now. Let's see how this system works, and when all else fails, let's just hold hands and remember how much we love each other.
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